How can researchers ethically and effectively share and reuse qualitative longitudinal data collected across diverse global contexts?  ​

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Our initiative seeks to answer this important question by developing and testing best-practice recommendations and an analytic toolkit for working with longitudinal qualitative data collected across diverse settings in youth mental health research. 

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The initiative brings together international researchers and lived experience experts to ensure that social and epistemic justice, transparency, context-sensitivity and co-production inform every stage of the work.  

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Focusing on data from young people with lived experience of anxiety, depression, and psychosis, the initiative combines a rapid review (2015–2025) and a co-designed survey to identify, develop and test ethical, methodological, and practical guidance and recommendations for sharing, anonymization, and secondary analysis of qualitative data. Our goal is to protect qualitative research participants’ privacy while preserving attention to context and meaning. 

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We are part of a larger Wellcome Learning Network with two additional projects focused on sharing of longitudinal qualitative data and secondary analysis of speech data collected across diverse contexts.  Ultimately, our initiative aims to support the collection, sharing, use and secondary analysis of qualitative data to advance understandings, experiences and outcomes in youth mental health.